An introduction to Dr. David Bell
I've known David Bell since meeting him at a large patient and scientific conference for ME in Portland, Oregon in 1987. I was thirty-six and he was only a few years older. We were each, in our ways, entering the often bizarre and always troubling world of ME, neither of us appreciating then how it would consume the rest of our lives in a bonfire of politics and suffering, a conflagration interrupted and relieved by the excitement of new scientific discoveries, which were legion in those years. David recently agreed to a Q & A with me and requested our topic: low blood volume in ME, a critical area of study that has yet to be pursued with any vigor and one that David pioneered. Here, I relate my first impressions of David and his involvement with the Lyndonville outbreak of 1984-85, to be followed in the next installment by our conversation about low blood volume in ME.
Anatomy of a Missed Opportunity, Part Two
A 1996 interview in the New York Native with U.S. House democrat Jerrold Nadler...If this interview doesn't get your blood boiling, nothing will. It's a great accompaniment to my recent interview with long-time ME advocate Eileen Holderman, who talks about her approach to advocacy and what might best be done to fix the most serious problems faced by people with ME. She suggested the best approach would be to find a hero in Congress, admitting nevertheless that efforts to do so over the years had been unsuccessful despite intensive lobbying. Twenty-two years ago, however, Congressman Jerrold Nadler offered his help, suggesting to patients how to best approach Congress and how to move the struggle for recognition and worthy science forward. Nadler ultimately got his investigations, but his idea to write legislation to force CDC to investigate specific aspects of ME, such as whether it was transmissible, went nowhere.